Archives des mots-clés : health sciences

Completeness of reporting in abstracts of randomized controlled trials in subscription and open access journals: cross-sectional study

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Authors : Iva Jerčić Martinić-Cezar, Ana Marušić

Background

Open access (OA) journals are becoming a publication standard for health research, but it is not clear how they differ from traditional subscription journals in the quality of research reporting.

We assessed the completeness of results reporting in abstracts of randomized controlled trials (RCTs) published in these journals.

Methods

We used the Consolidated Standards of Reporting Trials Checklist for Abstracts (CONSORT-A) to assess the completeness of reporting in abstracts of parallel-design RCTs published in subscription journals (n = 149; New England Journal of Medicine, Journal of the American Medical Association, Annals of Internal Medicine, and Lancet) and OA journals (n = 119; BioMedCentral series, PLoS journals) in 2016 and 2017.

Results

Abstracts in subscription journals completely reported 79% (95% confidence interval [CI], 77–81%) of 16 CONSORT-A items, compared with 65% (95% CI, 63–67%) of these items in abstracts from OA journals (P < 0.001, chi-square test). The median number of completely reported CONSORT-A items was 13 (95% CI, 12–13) in subscription journal articles and 11 (95% CI, 10–11) in OA journal articles.

Subscription journal articles had significantly more complete reporting than OA journal articles for nine CONSORT-A items and did not differ in reporting for items trial design, outcome, randomization, blinding (masking), recruitment, and conclusions. OA journals were better than subscription journals in reporting randomized study design in the title.

Conclusion

Abstracts of randomized controlled trials published in subscription medical journals have greater completeness of reporting than abstracts published in OA journals.

OA journals should take appropriate measures to ensure that published articles contain adequate detail to facilitate understanding and quality appraisal of research reports about RCTs.

URL : Completeness of reporting in abstracts of randomized controlled trials in subscription and open access journals: cross-sectional study

DOI : https://doi.org/10.1186/s13063-019-3781-x

The institutional repository landscape in medical schools and academic health centers: a 2018 snapshot view and analysis

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Authors : Daniel G. Kipnis, Lisa A. Palmer, Ramune K. Kubilius

Objective

This study uses survey research methods to gain a deeper understanding of the institutional repository (IR) landscape in medical schools and academic health centers.

Methods

Members of the Association of Academic Health Sciences Libraries (AAHSL) were surveyed about their IRs. The authors used a mixed-methods approach of a survey and qualitative content analysis to identify common themes.

Results

Survey results indicate that a large majority of responding medical schools and academic health centers have or are implementing an IR (35 out of 50, 70%). Of these, 60% (21 institutions) participate in an institution-wide IR rather than administer their own repositories.

Much of the archived content is grey literature that has not already been published, but the percentage of original content varies greatly among institutions. The majority (57.1%) of respondent institutions are not considering an open access policy or mandate. Most institutions (71.4%) reported that repository staff are depositing materials on behalf of users.

DSpace and bepress Digital Commons are the most popular repository platforms in this community. The planned enhancements that were most frequently reported were implementing a discovery layer and ORCID integration. The majority of respondents (54.3%) do not plan to migrate to a different platform in the foreseeable future.

Analysis of respondent comments identified the following themes: integration, redundancy, and reporting; alternatives and exploration; uniqueness; participation; and funding and operations.

Conclusions

The study results capture a view of the IR landscape in medical schools and academic health centers and help readers understand what services their peers have in place as well as their plans for future developments.

URL : The institutional repository landscape in medical schools and academic health centers: a 2018 snapshot view and analysis

DOI : https://dx.doi.org/10.5195%2Fjmla.2019.653

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

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Authors : Kerina H Jones, Helen Daniels, Emma Squires, David V Ford

Background

The literature abounds with increasing numbers of research studies using genomic data in combination with health data (eg, health records and phenotypic and lifestyle data), with great potential for large-scale research and precision medicine.

However, concerns have been raised about social acceptability and risks posed for individuals and their kin. Although there has been public engagement on various aspects of this topic, there is a lack of information about public views on data access models.

Objective

This study aimed to address the lack of information on the social acceptability of access models for reusing genomic data collected for research in conjunction with health data.

Models considered were open web-based access, released externally to researchers, and access within a data safe haven.

Methods

Views were ascertained using a series of 8 public workshops (N=116). The workshops included an explanation of benefits and risks in using genomic data with health data, a facilitated discussion, and an exit questionnaire.

The resulting quantitative data were analyzed using descriptive and inferential statistics, and the qualitative data were analyzed for emerging themes.

Results

Respondents placed a high value on the reuse of genomic data but raised concerns including data misuse, information governance, and discrimination. They showed a preference for giving consent and use of data within a safe haven over external release or open access.

Perceived risks with open access included data being used by unscrupulous parties, with external release included data security, and with safe havens included the need for robust safeguards.

Conclusions: This is the first known study exploring public views of access models for reusing anonymized genomic and health data in research.

It indicated that people are generally amenable but prefer data safe havens because of perceived sensitivities. We recommend that public views be incorporated into guidance on models for the reuse of genomic and health data.

URL : Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

DOI : https://doi.org/10.2196/14384

The advantages of UK Biobank’s open access strategy for health research

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Authors : Megan Conroy, Jonathan Sellors, Mark Effingham, Thomas J. Littlejohns, Chris Boultwood, Lorraine Gillions, Cathie L.M. Sudlow, Rory Collins, Naomi E. Allen

Ready access to health research studies is becoming more important as researchers, and their funders, seek to maximise the opportunities for scientific innovation and health improvements.

Large‐scale population‐based prospective studies are particularly useful for multidisciplinary research into the causes, treatment and prevention of many different diseases. UK Biobank has been established as an open‐access resource for public health research, with the intention of making the data as widely available as possible in an equitable and transparent manner.

Access to UK Biobank’s unique breadth of phenotypic and genetic data has attracted researchers worldwide from across academia and industry. As a consequence, it has enabled scientists to perform world‐leading collaborative research.

Moreover, open access to an already deeply characterized cohort has encouraged both public and private sector investment in further enhancements to make UK Biobank an unparalleled resource for public health research and an exemplar for the development of open access approaches for other studies.

DOI : https://doi.org/10.1111/joim.12955

Share or perish: Social media and the International Journal of Mental Health Nursing

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Authors : Paul McNamara, Kim Usher

The impact of published research is sometimes measured by the number of citations an individual article accumulates. However, the time from publication to citation can be extensive. Years may pass before authors are able to measure the impact of their publication. Social media provides individuals and organizations a powerful medium with which to share information.

The power of social media is sometimes harnessed to share scholarly works, especially journal article citations and quotes. A non‐traditional bibliometric is required to understand the impact social media has on disseminating scholarly works/research.

The International Journal of Mental Health Nursing (IJMHN) appointed a social media editor as of 1 January 2017 to implement a strategy to increase the impact and reach of the journal’s articles.

To measure the impact of the IJMHN social media strategy, quantitative data for the eighteen months prior to the social media editor start date, and the eighteen months after that date (i.e.: from 01 July 2015 to 30 June 2018) were acquired and analysed.

Quantitative evidence demonstrates the effectiveness of one journal’s social media strategy in increasing the reach and readership of the articles it publishes.

This information may be of interest to those considering where to publish their research, those wanting to amplify the reach of their research, those who fund research, and journal editors and boards.

DOI : https://doi.org/10.1111/inm.12600

The complex nature of research dissemination practices among public health faculty researchers

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Authors : Rosie Hanneke, Jeanne M. Link

Objective

This study explores the variety of information formats used and audiences targeted by public health faculty in the process of disseminating research.

Methods

The authors conducted semi-structured interviews with twelve faculty members in the School of Public Health at the University of Illinois at Chicago, asking them about their research practices, habits, and preferences.

Results

Faculty scholars disseminate their research findings in a variety of formats intended for multiple audiences, including not only their peers in academia, but also public health practitioners, policymakers, government and other agencies, and community partners.

Conclusion

Librarians who serve public health faculty should bear in mind the diversity of faculty’s information needs when designing and improving library services and resources, particularly those related to research dissemination and knowledge translation.

Promising areas for growth in health sciences libraries include supporting data visualization, measuring the impact of non-scholarly publications, and promoting institutional repositories for dissemination of research.

URL : The complex nature of research dissemination practices among public health faculty researchers

Alternative location : http://jmla.pitt.edu/ojs/jmla/article/view/524

La remédiation des savoirs en santé dans les communautés en ligne sur les transidentités

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Auteurs/Authors : Lucie Delias, Mélanie Lallet

Depuis une trentaine d’années, les associations de support et de défense des personnes trans militent pour une prise en charge médicale des parcours de transition qui laisse plus de marge de manœuvre aux patient·e·s, dans un contexte français où les soins liés à la transidentité dans le secteur public s’effectuent au sein d’équipes hospitalières parfois accusées de mettre en place des protocoles trop stricts à partir d’une conception binaire du genre et de la sexualité.

Partant du concept de communauté épistémique, cet article propose d’analyser les stratégies communicationnelles déployées en ligne par la communauté trans, qui, en réponse à des institutions souvent opaques et grâce à un travail d’expertise profane, opère une remédiation des savoirs en santé à travers la production, la publication et la mise en circulation de connaissances scientifiques sur l’internet.

URL : https://journals.openedition.org/rfsic/4813