Étiquette : health sciences

Catégories
EN

Research Data Sharing in Spain: Exploring Determinants, Practices, and Perceptions

Authors : Rafael Aleixandre-Benavent, Antonio Vidal-Infer, Adolfo Alonso-Arroyo, Fernanda Peset, Antonia Ferrer Sapena

This work provides an overview of a Spanish survey on research data, which was carried out within the framework of the project Datasea at the beginning of 2015. It is covered by the objectives of sustainable development (goal 9) to support the research.

The purpose of the study was to identify the habits and current experiences of Spanish researchers in the health sciences in relation to the management and sharing of raw research data. Method: An electronic questionnaire composed of 40 questions divided into three blocks was designed.

The three Section s contained questions on the following aspects: (A) personal information; (B) creation and reuse of data; and (C) preservation of data. The questionnaire was sent by email to a list of universities in Spain to be distributed among their researchers and professors. A total of 1063 researchers completed the questionnaire.

More than half of the respondents (54.9%) lacked a data management plan; nearly a quarter had storage systems for the research group; 81.5% used personal computers to store data; “Contact with colleagues” was the most frequent means used to locate and access other researchers’ data; and nearly 60% of researchers stated their data were available to the research group and collaborating colleagues.

The main fears about sharing were legal questions (47.9%), misuse or interpretation of data (42.7%), and loss of authorship (28.7%).

The results allow us to understand the state of data sharing among Spanish researchers and can serve as a basis to identify the needs of researchers to share data, optimize existing infrastructure, and promote data sharing among those who do not practice it yet.

URL : Research Data Sharing in Spain: Exploring Determinants, Practices, and Perceptions

DOI : https://doi.org/10.3390/data5020029

Catégories
EN

Incentives to Open Access: Perspectives of Health Science Researchers

Authors : Carmen López-Vergara, Pilar Flores Asenjo, Alfonso Rosa-García

Technological development has transformed academic publication over the past two decades and new publication models, especially Open Access, have captured an important part of the publishing market, traditionally dominated by the Subscription publication model.

Although Health Sciences have been one of the leading fields promoting Open Access, the perspectives of Health Science researchers on the benefits and possibilities of Open Access remain an open question.

The present study sought to unveil the perspective of researchers on scientific publication decisions, in terms of the Subscription and Open Access publication model, Gold Road.

With this aim, we surveyed Spanish researchers in Health Sciences. Our findings show that the value of publishing in Open Access journals increases as the experience of the researcher increases and the less she/he values the impact factor.

Moreover, visibility and dissemination of the results are the main determinants of publication when choosing an Open Access journal as the first option. According to the response of the researchers, the reduction of fees and the increase in financing are important economic incentive measures to promote the Open Access publication model. It is widely accepted that the volume of Open Access publications will increase in the future.

URL : Incentives to Open Access: Perspectives of Health Science Researchers

DOI : https://doi.org/10.3390/publications8020029

Catégories
Non classé

Data Sharing in the Context of Health-Related Citizen Science

Authors : Mary A. Majumder, Amy L. McGuire

As citizen science expands, questions arise regarding the applicability of norms and policies created in the context of conventional science. This article focuses on data sharing in the conduct of health-related citizen science, asking whether citizen scientists have obligations to share data and publish findings on par with the obligations of professional scientists.

We conclude that there are good reasons for supporting citizen scientists in sharing data and publishing findings, and we applaud recent efforts to facilitate data sharing.

At the same time, we believe it is problematic to treat data sharing and publication as ethical requirements for citizen scientists, especially where there is the potential for burden and harm without compensating benefit.

DOI : https://doi.org/10.1177/1073110520917044

Catégories
Non classé

SPI-Hub™: a gateway to scholarly publishing information

Authors : Taneya Y. Koonce, Mallory N. Blasingame, Jerry Zhao, Annette M. Williams, Jing Su, Spencer J. DesAutels, Dario A. Giuse, John D. Clark, Zachary E. Fox, Nunzia Bettinsoli Giuse

Background

Advances in the health sciences rely on sharing research and data through publication. As information professionals are often asked to contribute their knowledge to assist clinicians and researchers in selecting journals for publication, the authors recognized an opportunity to build a decision support tool, SPI-Hub: Scholarly Publishing Information Hub™, to capture the team’s collective publishing industry knowledge, while carefully retaining the quality of service.

Case Presentation

SPI-Hub’s decision support functionality relies on a data framework that describes journal publication policies and practices through a newly designed metadata structure, the Knowledge Management Journal Record™.

Metadata fields are populated through a semi-automated process that uses custom programming to access content from multiple sources. Each record includes 25 metadata fields representing best publishing practices. Currently, the database includes more than 24,000 health sciences journal records.

To correctly capture the resources needed for both completion and future maintenance of the project, the team conducted an internal study to assess time requirements for completing records through different stages of automation.

Conclusions

The journal decision support tool, SPI-Hub, provides an opportunity to assess publication practices by compiling data from a variety of sources in a single location.

Automated and semi-automated approaches have effectively reduced the time needed for data collection.

Through a comprehensive knowledge management framework and the incorporation of multiple quality points specific to each journal, SPI-Hub provides prospective users with both recommendations for publication and holistic assessment of the trustworthiness of journals in which to publish research and acquire trusted knowledge.

URL : SPI-Hub™: a gateway to scholarly publishing information

Original location : http://jmla.pitt.edu/ojs/jmla/article/view/815

Catégories
EN

Reproducible research practices, openness and transparency in health economic evaluations: study protocol for a cross-sectional comparative analysis

Authors : Ferrán Catalá-López, Lisa Caulley, Manuel Ridao, Brian Hutton, Don Husereau, Michael F Drummond, Adolfo Alonso-Arroyo, Manuel Pardo-Fernández, Enrique Bernal-Delgado, Ricard Meneu, Rafael Tabarés-Seisdedos, José Ramón Repullo, David Moher

Introduction

There has been a growing awareness of the need for rigorously and transparent reported health research, to ensure the reproducibility of studies by future researchers.

Health economic evaluations, the comparative analysis of alternative interventions in terms of their costs and consequences, have been promoted as an important tool to inform decision-making.

The objective of this study will be to investigate the extent to which articles of economic evaluations of healthcare interventions indexed in MEDLINE incorporate research practices that promote transparency, openness and reproducibility.

Methods and analysis

This is the study protocol for a cross-sectional comparative analysis. We registered the study protocol within the Open Science Framework (osf.io/gzaxr). We will evaluate a random sample of 600 cost-effectiveness analysis publications, a specific form of health economic evaluations, indexed in MEDLINE during 2012 (n=200), 2019 (n=200) and 2022 (n=200).

We will include published papers written in English reporting an incremental cost-effectiveness ratio in terms of costs per life years gained, quality-adjusted life years and/or disability-adjusted life years. Screening and selection of articles will be conducted by at least two researchers.

Reproducible research practices, openness and transparency in each article will be extracted using a standardised data extraction form by multiple researchers, with a 33% random sample (n=200) extracted in duplicate.

Information on general, methodological and reproducibility items will be reported, stratified by year, citation of the Consolidated Health Economic Evaluation Reporting Standards (CHEERS) statement and journal. Risk ratios with 95% CIs will be calculated to represent changes in reporting between 2012–2019 and 2019–2022.

Ethics and dissemination

Due to the nature of the proposed study, no ethical approval will be required. All data will be deposited in a cross-disciplinary public repository.

It is anticipated the study findings could be relevant to a variety of audiences. Study findings will be disseminated at scientific conferences and published in peer-reviewed journals.

URL : Reproducible research practices, openness and transparency in health economic evaluations: study protocol for a cross-sectional comparative analysis

DOI : http://dx.doi.org/10.1136/bmjopen-2019-034463

Catégories
FR

Stratégies numériques de diffusion auprès des décideurs, des résultats des chercheurs en santé publique

Auteurs/Authors : Ilaria Montagni, Will Stahl-Timmins, Lise Monneraud, Tobias Kurth

L’élaboration de politiques fondées sur des données probantes est un phénomène de plus en plus répandu qui encourage les chercheurs et les décideurs à communiquer efficacement entre eux.

Les médias digitaux sont censés faciliter les échanges entre les deux acteurs, mais leur disponibilité et leur utilisation n’ont pas encore été examinées en détail.

Avec une approche interdisciplinaire, cet article vise à fournir une taxonomie des médias digitaux utilisés par les chercheurs et les décideurs pour partager leurs connaissances dans le domaine spécifique de la santé publique.

Dans le cadre de la digital health communication, nous décrivons le web classique, le web 2.0 ainsi que six autres médias digitaux (hypertexte, images, vidéos, audio, infographie et jeux) à disposition des chercheurs et des décideurs en santé.

Ensuite, nous discutons des risques et des possibilités liés à la vulgarisation scientifique en ligne pour l’élaboration des politiques de santé. Enfin, nous formulons des recommandations fondées sur la théorie et sur la pratique destinées aux chercheurs afin qu’ils diffusent au mieux les résultats de leurs recherches sur la santé aux décideurs via Internet.

URL : https://lesenjeux.univ-grenoble-alpes.fr/2019/dossier/02-strategies-numeriques-de-diffusion-aupres-des-decideurs-des-resultats-des-chercheurs-en-sante-publique

Catégories
FR

La place accordée aux informations scientifiques dans les magazines de santé télévisuels

Auteur/Author : Pascale Mansier

Les magazines de santé télévisuels sont une constante du paysage audiovisuel depuis 60 ans et contribuent à la vulgarisation des connaissances. Depuis 1998, ils sont à l’antenne quotidiennement et en direct, hors weekend.

L’analyse de leur rubriquage depuis cette date permet de rendre compte de la place spécifiquement accordée aux informations scientifiques provenant du monde de la recherche. Les informations scientifiques contribuent pour une part modeste mais constante de la politique éditoriale des magazines de santé.

Les téléspectateurs entendent parler de recherche une à deux fois par semaine dans ces magazines et cette fréquence n’a pas été modulée par la création d’un site Internet dédié aux émissions, alors que celui aurait pu permettre un plus large accès à des connaissances scientifiques.

Dans ces magazines de santé télévisuels pour lesquels les producteurs postulent de la part des téléspectateurs une demande de réponses à des enjeux médicaux, la recherche scientifique, par essence source d’interrogations, d’incertitudes et de remise en question des connaissances, semble jouer un rôle minoritaire.

URL : https://lesenjeux.univ-grenoble-alpes.fr/2019/dossier/03-la-place-accordee-aux-informations-scientifiques-dans-les-magazines-de-sante-televisuels