Étiquette : data sharing

Catégories
EN

The Role of Data in an Emerging Research Community : Environmental Health Research as an Exemplar

Authors : Danielle Polloc, An Yan, Michelle Parker, Suzie Allard

Open science data benefit society by facilitating convergence across domains that are examining the same scientific problem. While cross-disciplinary data sharing and reuse is essential to the research done by convergent communities, so far little is known about the role data play in how these communities interact.

An understanding of the role of data in these collaborations can help us identify and meet the needs of emerging research communities which may predict the next challenges faced by science. This paper represents an exploratory study of one emerging community, the environmental health community, examining how environmental health research groups form, collaborate, and share data.

Five key insights about the role of data in emerging research communities are identified and suggestions are made for further research.

URL : The Role of Data in an Emerging Research Community : Environmental Health Research as an Exemplar

DOI : https://doi.org/10.2218/ijdc.v16i1.653

Catégories
EN

Globally Accessible Distributed Data Sharing (GADDS): a decentralized FAIR platform to facilitate data sharing in the life sciences

Authors : Pavel Vazquez, Kayoko Hirayama-Shoji, Steffen Novik, Stefan Krauss, Simon Rayner

Motivation

Technical advances have revolutionized the life sciences and researchers commonly face challenges associated with handling large amounts of heterogeneous digital data. The Findable, Accessible, Interoperable and Reusable (FAIR) principles provide a framework to support effective data management.

However, implementing this framework is beyond the means of most researchers in terms of resources and expertise, requiring awareness of metadata, policies, community agreements, and other factors such as vocabularies and ontologies.

Results

We have developed the Globally Accessible Distributed Data Sharing (GADDS) platform to facilitate FAIR-like data-sharing in cross-disciplinary research collaborations. The platform consists of (i) a blockchain based metadata quality control system, (ii) a private cloud-like storage system and (iii) a version control system. GADDS is built with containerized technologies, providing minimal hardware standards and easing scalability, and offers decentralized trust via transparency of metadata, facilitating data exchange and collaboration.

As a use case, we provide an example implementation in engineered living material technology within the Hybrid Technology Hub at the University of Oslo.

URL : Globally Accessible Distributed Data Sharing (GADDS): a decentralized FAIR platform to facilitate data sharing in the life sciences

DOI : https://doi.org/10.1093/bioinformatics/btac362

Catégories
EN

Open Access in Geochemistry from Preprints to Data Sharing: Past, Present, and Future

Authors : Olivier Pourret, Dasapta Erwin Irawan

In this short communication, we discuss the latest advances regarding Open Access in the earth sciences and geochemistry community from preprints to findable, accessible, interoperable, and reusable data following the 14f session held at Goldschmidt conference (4–9 July 2021) dedicated to “Open Access in Earth Sciences”.

URL : Open Access in Geochemistry from Preprints to Data Sharing: Past, Present, and Future

DOI : https://doi.org/10.3390/publications10010003

Catégories
EN

Bringing All the Stakeholders to the Table: A Collaborative Approach to Data Sharing

Authors : Megan N. O’Donnell, Curtis Brundy

Objective

This paper examines a unique data set disclosure process at a medium sized, land grant, research university and the campus collaboration that led to its creation.

Methods

The authors utilized a single case study methodology, reviewing relevant documents and workflows. As first-hand participants in the collaboration and disclosure process development, their own accounts and experiences also were utilized.

Results

A collaborative approach to enhancing research data sharing is essential, considering the wide array of stakeholders involved across the life cycle of research data. A transparent, inclusive data set disclosure process is a viable route to ensuring research data can be appropriately shared.

Conclusions

Successful sharing of research data impacts a range of university units and individuals. The establishment of productive working relationships and trust between these stakeholders is critical to expanding the sharing of research data and to establishing shared workflows.

URL : Bringing All the Stakeholders to the Table: A Collaborative Approach to Data Sharing

DOI : https://doi.org/10.7191/jeslib.2022.1224

Catégories
FR

Dissimuler ou disséminer ? Une étude sur le sort réservé aux résultats négatifs

Auteures/Authors : Marie-Emilia Herbet, Jérémie Leonard, Maria Santangelo, Lucie Albaret

Une enquête composée de 34 questions a été adressée à des chercheurs en chimie, physique, sciences de l’ingénieur et de l’environnement, en vue d’identifier leur rapport aux résultats de recherche infructueux ainsi que les freins et les leviers de leur diffusion.

L’étude se fonde sur 310 réponses complètes émanant de participants affiliés à des établissements de recherche et d’enseignement français. Menée dans le cadre du projet Datacc, porté par les bibliothèques universitaires de Lyon et Grenoble Alpes, engagées dans l’accompagnement des chercheurs à l’ouverture des données de recherche, notre étude permet de combler le déficit de données sur le sujet au regard des disciplines concernées.

Elle relève que 81% des chercheurs interrogés ont déjà produit des résultats négatifs pertinents et 75% se disent prêts à publier ce type de données. Pourtant, seuls 12,5% des répondants ont déjà eu l’occasion de le faire dans une revue scientifique. Ce contraste béant entre l’intention et la pratique soulève des interrogations sur les obstacles en présence et les solutions potentielles à apporter.

URL : Dissimuler ou disséminer ? Une étude sur le sort réservé aux résultats négatifs

Original location : https://hal.archives-ouvertes.fr/hal-03371040

Catégories
FR

L’ouverture des matériaux de recherche ethnographiques en question

Auteur-e-s/Authors : Florence Revelin, Alix Levain, Morgane Mignon, Marianne Noel, Betty Queffelec, Pascal Raux, Hervé Squividant

Le mouvement d’ouverture des données scientifiques constitue, pour les sciences humaines et sociales (SHS), un défi à la fois épistémologique, juridique, éthique et technique. Il se manifeste par des normes et injonctions multiples vis-à-vis des communautés de recherche, qui peinent à s’y conformer et à se saisir des instruments mis à leur disposition.

Le projet PARDOQ vise à rendre intelligibles les implications complexes de ce mouvement pour les communautés travaillant à partir de données qualitatives (ethnographiques), à travers l’analyse de l’expérience de chercheuses et chercheurs confronté.e.s à la tension entre partage et protection des données ethnographiques, en prenant appui d’une part sur une étude de cas (le programme de recherche interdisciplinaire Parchemins) et d’autre part sur une enquête auprès de chercheurs.euses pratiquant l’ethnographie et de membres de réseaux scientifiques, techniques et juridiques d’appui et à la recherche.

URL : L’ouverture des matériaux de recherche ethnographiques en question

Original location : https://hal.archives-ouvertes.fr/hal-03238067

Catégories
EN

Status, use and impact of sharing individual participant data from clinical trials: a scoping review

Authors : Christian Ohmann, David Moher, Maximilian Siebert, Edith Motschall, Florian Naudet

Objectives

To explore the impact of data-sharing initiatives on the intent to share data, on actual data sharing, on the use of shared data and on research output and impact of shared data.

Eligibility criteria

All studies investigating data-sharing practices for individual participant data (IPD) from clinical trials.

Sources of evidence

We searched the Medline database, the Cochrane Library, the Science Citation Index Expanded and the Social Sciences Citation Index via Web of Science, and preprints and proceedings of the International Congress on Peer Review and Scientific Publication.

In addition, we inspected major clinical trial data-sharing platforms, contacted major journals/publishers, editorial groups and some funders.

Charting methods

Two reviewers independently extracted information on methods and results from resources identified using a standardised questionnaire. A map of the extracted data was constructed and accompanied by a narrative summary for each outcome domain.

Results

93 studies identified in the literature search (published between 2001 and 2020, median: 2018) and 5 from additional information sources were included in the scoping review. Most studies were descriptive and focused on early phases of the data-sharing process. While the willingness to share IPD from clinical trials is extremely high, actual data-sharing rates are suboptimal.

A survey of journal data suggests poor to moderate enforcement of the policies by publishers. Metrics provided by platforms suggest that a large majority of data remains unrequested. When requested, the purpose of the reuse is more often secondary analyses and meta-analyses, rarely re-analyses. Finally, studies focused on the real impact of data-sharing were rare and used surrogates such as citation metrics.

Conclusions

There is currently a gap in the evidence base for the impact of IPD sharing, which entails uncertainties in the implementation of current data-sharing policies. High level evidence is needed to assess whether the value of medical research increases with data-sharing practices.

URL : Status, use and impact of sharing individual participant data from clinical trials: a scoping review

Original location : https://bmjopen.bmj.com/content/11/8/e049228