Catégorie : EN

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Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research : A Systematic Scoping Review

There is increasing support for sharing individual-level data generated by medical and public health research. This scoping review of empirical research and conceptual literature examined stakeholders’ perspectives of ethical best practices in data sharing, particularly in low- and middle-income settings. Sixty-nine empirical and conceptual articles were reviewed, of which, only five were empirical studies and eight were conceptual articles focusing on low- and middle-income settings.

We conclude that support for sharing individual-level data is contingent on the development and implementation of international and local policies and processes to support ethical best practices. Further conceptual and empirical research is needed to ensure data sharing policies and processes in low- and middle-income settings are appropriately informed by stakeholders’ perspectives.

URL : Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research

Alternative location : http://m.jre.sagepub.com/content/10/3/225

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Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings

It is increasingly recognized that effective and appropriate data sharing requires the development of models of good datasharing practice capable of taking seriously both the potential benefits to be gained and the importance of ensuring that the rights and interests of participants are respected and that risk of harms is minimized. Calls for the greater sharing of individual-level data from biomedical and public health research are receiving support among researchers and research funders. Despite its potential importance, data sharing presents important ethical, social, and institutional challenges in low-income settings.

In this article, we report on qualitative research conducted in five low- and middle-income countries exploring the experiences of key research stakeholders and their views about what constitutes good data-sharing practice.

URL : Sharing Public Health Research Data

Alternative location : http://m.jre.sagepub.com/content/10/3/217

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Legal Aspects of Open Access to Publicly Funded Research

Internet growth, content digitisation, and expanding “big data” and data analytics capabilities have affected the ways in which publicly funded research results are accessed, disseminated and used. While these technological advances have made sharing and processing information easier, that does not change the fact that the information may be protected by IP laws.

Open access efforts, which aim to make the outputs of publicly funded research more widely accessible in digital formats, therefore raise a number of IP policy questions. To explain the interplay between open access and IP laws, this chapter provides an overview of the IP regimes that protect research outputs in a sample of OECD jurisdictions. It then reviews the open access policies that are in place in some of those jurisdictions and examines two contexts in which IP questions can arise when open access principles are applied: public/private partnerships and text and data mining.

URL : Legal Aspects of Open Access to Publicly Funded Research

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Too much of a good thing? An observational study of prolific authors

Introduction

Researchers’ productivity is usually measured in terms of their publication output. A minimum number of publications is required for some medical qualifications and professional appointments. However, authoring an unfeasibly large number of publications might indicate disregard of authorship criteria or even fraud. We therefore examined publication patterns of highly prolific authors in 4 medical specialties.

Methods

We analysed Medline publications from 2008–12 using bespoke software to disambiguate individual authors focusing on 4 discrete topics (to further reduce the risk of combining publications from authors with the same name and affiliation). This enabled us to assess the number and type of publications per author per year.

Results

While 99% of authors were listed on fewer than 20 publications in the 5-year period, 24 authors in the chosen areas were listed on at least 25 publications in a single year (i.e., >1 publication per 10 working days). Types of publication by the prolific authors varied but included substantial numbers of original research papers (not simply editorials or letters).

Conclusions

Institutions and funders should be alert to unfeasibly prolific authors when measuring and creating incentives for researcher productivity.

URL : Too much of a good thing? An observational study of prolific authors

DOI : https://dx.doi.org/10.7717/peerj.1154

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A New Ranking Scheme for the Institutional Scientific Performance

We propose a new performance indicator to evaluate the productivity of research institutions by their disseminated scientific papers. The new quality measure includes two principle components: the normalized impact factor of the journal in which paper was published, and the number of citations received per year since it was published. In both components, the scientific impacts are weighted by the contribution of authors from the evaluated institution.

As a whole, our new metric, namely, the institutional performance score takes into account both journal based impact and articles specific impacts. We apply this new scheme to evaluate research output performance of Turkish institutions specialized in astronomy and astrophysics in the period of 1998-2012. We discuss the implications of the new metric, and emphasize the benefits of it along with comparison to other proposed institutional performance indicators.

URL : http://arxiv.org/abs/1508.03713

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Document Supply of Grey Literature and Open Access: Ten Years Later

Purpose

The paper aims to investigate the impact of the open access movement on the document supply of grey literature. Design/methodology/approach – The paper is based on a comparative survey of five major scientific and technical information centres: The British Library (UK), KM (Canada), INIST-CNRS (France), KISTI (South Korea) and TIB Hannover (Germany).

Findings

The five institutions supplied less than 1.8 million supplied items in 2014, i.e. half of the activity in 2004 (−55 per cent). There were 85,000 grey documents, mainly conference proceedings and reports, i.e. 5 per cent of the overall activity, a historically low level compared to 2004 (−72 per cent). At the same time, they continue to expand their open access strategies. Just as in 2004 and 2008, these strategies are specific, and they reflect institutional and national choices rather than global approaches, with two or three common or comparable projects (PubMed Central, national repositories, attribution of DOIs to datasets, dissertations and other objects). In spite of all differences, their development reveals some common features, like budget cuts, legal barriers (copyright), focus on domestic needs and open access policies to foster dissemination and impact of research results.

Document supply for corporate customers tends to become a business-to-business service, while the delivery for the public sector relies more, than before, on resource sharing and networking with academic and public libraries. Except perhaps for the TIB Hannover, the declining importance of grey literature points towards their changing role – less intermediation, less acquisition and collection development and more high-value services, more dissemination and preservation capacities designed for the scientific community needs (research excellence, open access, data management, etc.).

Originality/value

The paper is a follow-up study of two surveys published in 2006 and 2009.

URL : http://archivesic.ccsd.cnrs.fr/sic_01181081

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Open access and document supply

Purpose

The paper provides an overview and update of what we actually know about the impact of open access on inter-lending and document supply.

Approach

A review of recent papers, published after the Berlin Declaration on Open Access in 2003.

Findings

Everything seems to oppose document supply and open access. Open access has contributed to the recent decline of ILL and document supply requests but is not the only reason and probably not the most important. Open repositories and open access journals have the potential to substitute ILL and documentsupply; yet for different reasons, including legal compliance, this substitution remains of limited interest. ILL and document supply institutions have started to integrate open access into their workflow and service provision in different ways, and the paper provides a conceptual framework with some perspectives for further service development.

Originality

Paradoxically, relatively few papers make the link between open access and document supply, with empirical and/or conceptual elements. This paperproposes a synthesis and opens perspectives for future development and research.

URL : http://archivesic.ccsd.cnrs.fr/sic_01083775