Étiquette : research data

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EN

Open Access in developing countries – attitudes and experiences of researchers

Authors : Andy Nobes, Sian Harris

Open Access is often considered as particularly beneficial to researchers in the Global South. However, research into awareness of and attitudes to Open Access has been largely dominated by voices from the Global North.

A survey was conducted of 507 researchers from the developing world and connected to INASP’s AuthorAID project to ascertain experiences and attitudes to Open Access publishing.

The survey revealed problems for the researchers in gaining access to research literature in the first place. There was a very positive attitude to Open Access research and Open Access journals, but when selecting a journal in which to publish, Open Access was seen as a much less important criterion than factors relating to international reputation.

Overall, a majority of respondents had published in an Open Access journal and most of these had paid an article processing charge. Knowledge and use of self-archiving via repositories varied, and only around 20% had deposited their research in an institutional repository.

The study also examined attitudes to copyright, revealing most respondents had heard of Creative Commons licences and were positive about the sharing of research for educational use and dissemination, but there was unease about research being used for commercial purposes.

Respondents revealed a surprisingly positive stance towards openly sharing research data, although many revealed that they would need further guidance on how to do so. The survey also revealed that the majority had received emails from so called ‘predatory’ publishers and that a small minority had published in them.

URL : Open Access in developing countries – attitudes and experiences of researchers

Alternative location : https://zenodo.org/record/3464868

Catégories
EN

Building Infrastructure for African Human Genomic Data Management

Authors: Ziyaad Parker, Suresh Maslamoney, Ayton Meintjes, Gerrit Botha, Sumir Panji, Scott Hazelhurst, Nicola Mulder

Human genomic data are large and complex, and require adequate infrastructure for secure storage and transfer. The NIH and The Wellcome Trust have funded multiple projects on genomic research, including the Human Heredity and Health in Africa (H3Africa) initiative, and data are required to be deposited into the public domain.

The European Genome-phenome Archive (EGA) is a repository for sequence and genotype data where the data access is controlled by access committees. Access is determined by a formal application procedure for the purpose of secure storage and distribution, and must be in line with the informed consent of the study participants.

H3Africa researchers based in Africa and generating their own data can benefit tremendously from the data sharing capabilities of the internet by using the appropriate technologies.

The H3Africa Data Archive is an effort between the H3Africa data generating projects, H3ABioNet and the EGA to store and submit genomic data to public repositories. H3ABioNet maintains the security of the H3Africa Data Archive, ensures ethical security compliance, supports users with data submission and facilitates the data transfer.

The goal is to ensure efficient data flow between researchers, the archive and the EGA or other public repositories.

To comply with the H3Africa data sharing and release policy, nine months after the data is in secure storage, H3ABioNet converts the data into an XML format ready for submission to EGA. This article describes the infrastructure that has been developed for African human genomic data management.

URL : Building Infrastructure for African Human Genomic Data Management

DOI : http://doi.org/10.5334/dsj-2019-047

Catégories
EN

Research data management and the evolutions of scholarship: policy, infrastructure and data literacy at KU Leuven

Authors : Tom Willaert, Jacob Cottyn, Ulrike Kenens, Thomas Vandendriessche, Demmy Verbeke, Roxanne Wyns

This case study critically examines ongoing developments in contemporary scholarship through the lens of research data management support at KU Leuven, and KU Leuven Libraries in particular.

By means of case-based examples, current initiatives for fostering sound scientific work and scholarship are considered in three associated domains: support for policy-making, the development of research infrastructures, and digital literacy training for students, scientists and scholars.

It is outlined how KU Leuven Libraries collaborates with partner services in order to contribute to KU Leuven’s research data management support network. Particular attention is devoted to the innovations that facilitate such collaborations.

These accounts of initial experiences form the basis for a reflection on best practices and pitfalls, and foreground a number of pertinent challenges facing the domain of research data management, including matters of scalability, technology acceptance and adoption, and methods for effectively gauging and communicating the manifold transformations of science and scholarship.

URL : Research data management and the evolutions of scholarship: policy, infrastructure and data literacy at KU Leuven

DOI : http://doi.org/10.18352/lq.10272

Catégories
EN

The Australian Research Data Commons

Authors : Michelle Barker, Ross Wilkinson, Andrew Treloar

A research data commons can provide researchers with the data and resources necessary to conduct world class research. More than this, a research data commons can be transformational in facilitating change in the way research is conducted, in terms of both research culture and the availability of research data and analytical tools.

This paper describes frameworks needed to build a transformational data commons, through examination of the development of the Australian Research Data Commons (ARDC) ARDC was formed in 2018 as part of a 20-year vision to transform Australia’s research culture by enabling access to the digital data and eResearch platforms that can significantly enhance research capacity.

ARDC is located within both national and international eResearch ecosystems, and its unique positioning must be understood, alongside the achievements of its three predecessor organisations, to understand the niche from which ARDC aims to provide maximum value and impact.

Consideration is given to the challenges inherent in both the current Australian ecosystem and beyond, to articulate ARDC’s focus going forward. The paper concludes with consideration of the international dimension, drawing on discussions around the development of a global data commons.

URL : The Australian Research Data Commons

DOI : http://doi.org/10.5334/dsj-2019-044

Catégories
EN

Workflows Allowing Creation of Journal Article Supporting Information and Findable, Accessible, Interoperable, and Reusable (FAIR)-Enabled Publication of Spectroscopic Data

Authors : Agustin Barba, Santiago Dominguez, Carlos Cobas, David P. Martinsen, Charles Romain, Henry S. Rzepa; Felipe Seoane

There is an increasing focus on the part of academic institutions, funding agencies, and publishers, if not researchers themselves, on preservation and sharing of research data. Motivations for sharing include research integrity, replicability, and reuse.

One of the barriers to publishing data is the extra work involved in preparing data for publication once a journal article and its supporting information have been completed.

In this work, a method is described to generate both human and machine-readable supporting information directly from the primary instrumental data files and to generate the metadata to ensure it is published in accordance with findable, accessible, interoperable, and reusable (FAIR) guidelines.

Using this approach, both the human readable supporting information and the primary (raw) data can be submitted simultaneously with little extra effort.

Although traditionally the data package would be sent to a journal publisher for publication alongside the article, the data package could also be published independently in an institutional FAIR data repository.

Workflows are described that store the data packages and generate metadata appropriate for such a repository. The methods both to generate and to publish the data packages have been implemented for NMR data, but the concept is extensible to other types of spectroscopic data as well.

URL : Workflows Allowing Creation of Journal Article Supporting Information and Findable, Accessible, Interoperable, and Reusable (FAIR)-Enabled Publication of Spectroscopic Data

DOI : https://doi.org/10.1021/acsomega.8b03005

Catégories
EN

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Authors : Kerina H Jones, Helen Daniels, Emma Squires, David V Ford

Background

The literature abounds with increasing numbers of research studies using genomic data in combination with health data (eg, health records and phenotypic and lifestyle data), with great potential for large-scale research and precision medicine.

However, concerns have been raised about social acceptability and risks posed for individuals and their kin. Although there has been public engagement on various aspects of this topic, there is a lack of information about public views on data access models.

Objective

This study aimed to address the lack of information on the social acceptability of access models for reusing genomic data collected for research in conjunction with health data.

Models considered were open web-based access, released externally to researchers, and access within a data safe haven.

Methods

Views were ascertained using a series of 8 public workshops (N=116). The workshops included an explanation of benefits and risks in using genomic data with health data, a facilitated discussion, and an exit questionnaire.

The resulting quantitative data were analyzed using descriptive and inferential statistics, and the qualitative data were analyzed for emerging themes.

Results

Respondents placed a high value on the reuse of genomic data but raised concerns including data misuse, information governance, and discrimination. They showed a preference for giving consent and use of data within a safe haven over external release or open access.

Perceived risks with open access included data being used by unscrupulous parties, with external release included data security, and with safe havens included the need for robust safeguards.

Conclusions: This is the first known study exploring public views of access models for reusing anonymized genomic and health data in research.

It indicated that people are generally amenable but prefer data safe havens because of perceived sensitivities. We recommend that public views be incorporated into guidance on models for the reuse of genomic and health data.

URL : Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

DOI : https://doi.org/10.2196/14384

Catégories
EN

Dataset search: a survey

Authors : Adriane Chapman, Elena Simperl, Laura Koesten, George Konstantinidis, Luis-Daniel Ibáñez, Emilia Kacprzak, Paul Groth

Generating value from data requires the ability to find, access and make sense of datasets. There are many efforts underway to encourage data sharing and reuse, from scientific publishers asking authors to submit data alongside manuscripts to data marketplaces, open data portals and data communities.

Google recently beta-released a search service for datasets, which allows users to discover data stored in various online repositories via keyword queries. These developments foreshadow an emerging research field around dataset search or retrieval that broadly encompasses frameworks, methods and tools that help match a user data need against a collection of datasets.

Here, we survey the state of the art of research and commercial systems and discuss what makes dataset search a field in its own right, with unique challenges and open questions.

We look at approaches and implementations from related areas dataset search is drawing upon, including information retrieval, databases, entity-centric and tabular search in order to identify possible paths to tackle these questions as well as immediate next steps that will take the field forward.

URL : Dataset search: a survey

DOI : https://doi.org/10.1007/s00778-019-00564-x