Archives des mots-clés : data sharing

Approaches to Data Sharing: An Analysis of NSF Data Management Plans from a Large Research University

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INTRODUCTION

Sharing digital research data is increasingly common, propelled by funding requirements, journal publishers, local campus policies, or community-driven expectations of more collaborative and interdisciplinary research environments. However, it is not well understood how researchers are addressing these expectations and whether they are transitioning from individualized practices to more thoughtful and potentially public approaches to data sharing that will enable reuse of their data.

METHODS

The University of Minnesota Libraries conducted a local opt-in study of data management plans (DMPs) included in funded National Science Foundation (NSF) grant proposals from January 2011 through June 2014. In order to understand the current data management and sharing practices of campus researchers, we solicited, coded, and analyzed 182 DMPs, accounting for 41% of the total number of plans available.

RESULTS

DMPs from seven colleges and academic units were included. The College of Science of Engineering accounted for 70% of the plans in our review. While 96% of DMPs mentioned data sharing, we found a variety of approaches for how PIs shared their data, where data was shared, the intended audiences for sharing, and practices for ensuring long-term reuse.

CONCLUSION

DMPs are useful tools to investigate researchers’ current plans and philosophies for how research outputs might be shared. Plans and strategies for data sharing are inconsistent across this sample, and researchers need to better understand what kind of sharing constitutes public access. More intervention is needed to ensure that researchers implement the sharing provisions in their plans to the fullest extent possible. These findings will help academic libraries develop practical, targeted data services for researchers that aim to increase the impact of institutional research.

URL : Approaches to Data Sharing: An Analysis of NSF Data Management Plans from a Large Research University

DOI : http://doi.org/10.7710/2162-3309.1231

Changes in Data Sharing and Data Reuse Practices and Perceptions among Scientists Worldwide

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The incorporation of data sharing into the research lifecycle is an important part of modern scholarly debate. In this study, the DataONE Usability and Assessment working group addresses two primary goals: To examine the current state of data sharing and reuse perceptions and practices among research scientists as they compare to the 2009/2010 baseline study, and to examine differences in practices and perceptions across age groups, geographic regions, and subject disciplines.

We distributed surveys to a multinational sample of scientific researchers at two different time periods (October 2009 to July 2010 and October 2013 to March 2014) to observe current states of data sharing and to see what, if any, changes have occurred in the past 3–4 years. We also looked at differences across age, geographic, and discipline-based groups as they currently exist in the 2013/2014 survey.

Results point to increased acceptance of and willingness to engage in data sharing, as well as an increase in actual data sharing behaviors. However, there is also increased perceived risk associated with data sharing, and specific barriers to data sharing persist. There are also differences across age groups, with younger respondents feeling more favorably toward data sharing and reuse, yet making less of their data available than older respondents. Geographic differences exist as well, which can in part be understood in terms of collectivist and individualist cultural differences.

An examination of subject disciplines shows that the constraints and enablers of data sharing and reuse manifest differently across disciplines. Implications of these findings include the continued need to build infrastructure that promotes data sharing while recognizing the needs of different research communities.

Moving into the future, organizations such as DataONE will continue to assess, monitor, educate, and provide the infrastructure necessary to support such complex grand science challenges.

URL : Changes in Data Sharing and Data Reuse Practices and Perceptions among Scientists Worldwide

DOI : 10.1371/journal.pone.0134826

Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings

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Sharing individual-level data from clinical and public health research is increasingly being seen as a core requirement for effective and efficient biomedical research. This article discusses the results of a systematic review and multisite qualitative study of key stakeholders’ perspectives on best practices in ethical data sharing in low- and middle-income settings.

Our research suggests that for data sharing to be effective and sustainable, multiple social and ethical requirements need to be met. An effective model of data sharing will be one in which considered judgments will need to be made about how best to achieve scientific progress, minimize risks of harm, promote fairness and reciprocity, and build and sustain trust.

URL : Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings

Alternative location : http://m.jre.sagepub.com/content/10/3/302

Developing Ethical Practices for Public Health Research Data Sharing in South Africa : The Views and Experiences From a Diverse Sample of Research Stakeholders

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The abundance of South African clinical and public health research data has the potential to unlock important and valuable future advances in biomedical science. Amid increasing calls for more effective sharing of individual-level data, commitment to promote access to research data is evident within South Africa’s public research sector, but national guidance and regulation are absent.

This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices. There was consensus about the utility of data sharing in publicly funded health research. However, disparate views emerged about the possible harms and benefits of sharing data and how these should be weighed. The relative dearth of policies governing data-sharing practices needs to be addressed and a framework of support developed that incentivizes data-sharing practices for researchers that are both ethical and effective.

URL : Developing Ethical Practices for Public Health Research Data Sharing in South Africa

Alternative location : http://m.jre.sagepub.com/content/10/3/290

Perceived Benefits, Harms, and Views About How to Share Data Responsibly : A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand

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The Thailand Major Overseas Programme coordinates large multi-center studies in tropical medicine and generates vast amounts of data. As the data sharing movement gains momentum, we wanted to understand attitudes and experiences of relevant stakeholders about what constitutes good data sharing practice. We conducted 15 interviews and three focus groups discussions involving 25 participants and found that they generally saw data sharing as something positive.

Data sharing was viewed as a means to contribute to scientific progress and lead to better quality analysis, better use of resources, greater accountability, and more outputs. However, there were also important reservations including potential harms to research participants, their communities, and the researchers themselves. Given these concerns, several areas for discussion were identified: data standardization, appropriate consent models, and governance.

URL : Journal of Empirical Research on Human Research Ethics-2015-Cheah-278-89

Alternative location : http://m.jre.sagepub.com/content/10/3/278

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya : Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement

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Increased global sharing of public health research data has potential to advance scientific progress but may present challenges to the interests of research stakeholders, particularly in low-to-middle income countries. Policies for data sharing should be responsive to public views, but there is little evidence of the systematic study of these from low-income countries.

This qualitative study explored views on fair data-sharing processes among 60 stakeholders in Kenya with varying research experience, using a deliberative approach. Stakeholders’ attitudes were informed by perceptions of benefit and concerns for research data sharing, including risks of stigmatization, loss of privacy, and undermining scientific careers and validity, reported in detail elsewhere.

In this article, we discuss institutional trust-building processes seen as central to perceptions of fairness in sharing research data in this setting, including forms of community involvement, individual prior awareness and agreement to data sharing, independence and accountability of governance mechanisms, and operating under a national framework.

URL : Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya

Alternative location : http://m.jre.sagepub.com/content/10/3/264

Trust, Respect, and Reciprocity : Informing Culturally Appropriate Data-Sharing Practice in Vietnam

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International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings.

This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context.

URL : Trust, Respect, and Reciprocity

Alternative location : http://m.jre.sagepub.com/content/10/3/251