Rethinking Data Sharing and Human Participant Protection in Social Science Research: Applications from the Qualitative Realm

Authors : Dessi Kirilova, Sebastian Karcher

While data sharing is becoming increasingly common in quantitative social inquiry, qualitative data are rarely shared. One factor inhibiting data sharing is a concern about human participant protections and privacy.

Protecting the confidentiality and safety of research participants is a concern for both quantitative and qualitative researchers, but it raises specific concerns within the epistemic context of qualitative research.

Thus, the applicability of emerging protection models from the quantitative realm must be carefully evaluated for application to the qualitative realm. At the same time, qualitative scholars already employ a variety of strategies for human-participant protection implicitly or informally during the research process.

In this practice paper, we assess available strategies for protecting human participants and how they can be deployed. We describe a spectrum of possible data management options, such as de-identification and applying access controls, including some already employed by the Qualitative Data Repository (QDR) in tandem with its pilot depositors.

Throughout the discussion, we consider the tension between modifying data or restricting access to them, and retaining their analytic value.

We argue that developing explicit guidelines for sharing qualitative data generated through interaction with humans will allow scholars to address privacy concerns and increase the secondary use of their data.

URL : Rethinking Data Sharing and Human Participant Protection in Social Science Research: Applications from the Qualitative Realm

DOI : http://doi.org/10.5334/dsj-2017-043

 

The new alchemy: Online networking, data sharing and research activity distribution tools for scientists

Authors : Antony J. Williams, Lou Peck, Sean Ekins

There is an abundance of free online tools accessible to scientists and others that can be used for online networking, data sharing and measuring research impact. Despite this, few scientists know how these tools can be used or fail to take advantage of using them as an integrated pipeline to raise awareness of their research outputs.

In this article, the authors describe their experiences with these tools and how they can make best use of them to make their scientific research generally more accessible, extending its reach beyond their own direct networks, and communicating their ideas to new audiences.

These efforts have the potential to drive science by sparking new collaborations and interdisciplinary research projects that may lead to future publications, funding and commercial opportunities.

The intent of this article is to: describe some of these freely accessible networking tools and affiliated products; demonstrate from our own experiences how they can be utilized effectively; and, inspire their adoption by new users for the benefit of science.

URL : The new alchemy: Online networking, data sharing and research activity distribution tools for scientists

DOI : http://dx.doi.org/10.12688/f1000research.12185.1

How to share data for collaboration

Authors : Shannon E Ellis, Jeffrey T Leek

Within the statistics community, a number of guiding principles for sharing data have emerged; however, these principles are not always made clear to collaborators generating the data. To bridge this divide, we have established a set of guidelines for sharing data.

In these, we highlight the need to provide raw data to the statistician, the importance of consistent formatting, and the necessity of including all essential experimental information and pre-processing steps carried out to the statistician. With these guidelines we hope to avoid errors and delays in data analysis.

URL : How to share data for collaboration

DOI : https://doi.org/10.7287/peerj.preprints.3139v1

 

The legal and policy framework for scientific data sharing, mining and reuse

Author : Mélanie Dulong de Rosnay

Text and Data Mining, the automatic processing of large amounts of scientific articles and datasets, is an essential practice for contemporary researchers. Some publishers are challenging it as a lawful activity and the topic is being discussed during European copyright law reform process.

In order to better understand the underlying debate and contribute to the policy discussion, this article first examines the legal status of data access and reuse and licensing policies. It then presents available options supporting the exercise of Text and Data Mining: publication under open licenses, open access legislations and a recognition of the legitimacy of the activity.

For that purpose, the paper analyses the scientific rational for sharing and its legal and technical challenges and opportunities. In particular, it surveys existing open access and open data legislations and discusses implementation in European and Latin America jurisdictions.

Framing Text and Data mining as an exception to copyright could be problematic as it de facto denies that this activity is part of a positive right to read and should not require additional permission nor licensing.

It is crucial in licenses and legislations to provide a correct definition of what is Open Access, and to address the question of pre-existing copyright agreements. Also, providing implementation means and technical support is key. Otherwise, legislations could remain declarations of good principles if repositories are acting as empty shells.

URL ; https://books.openedition.org/editionsmsh/9082

Scientific data from and for the citizen

Authors : Sven Schade, Chrisa Tsinaraki, Elena Roglia

Powered by advances of technology, today’s Citizen Science projects cover a wide range of thematic areas and are carried out from local to global levels. This wealth of activities creates an abundance of data, for example, in the forms of observations submitted by mobile phones; readings of low-cost sensors; or more general information about peoples’ activities.

The management and possible sharing of this data has become a research topic in its own right. We conducted a survey in the summer of 2015 in order to collectively analyze the state of play in Citizen Science.

This paper summarizes our main findings related to data access, standardization and data preservation. We provide examples of good practices in each of these areas and outline actions to address identified challenges.

URL : http://firstmonday.org/ojs/index.php/fm/article/view/7842

Journal Data Sharing Policies and Statistical Reporting Inconsistencies in Psychology

Authors : Michele Nuijten, Jeroen Borghuis, Coosje Veldkamp, Linda Alvarez, Marcel van Assen, Jelte Wicherts

In this paper, we present three studies that investigate the relation between data sharing and statistical reporting inconsistencies. Previous research found that reluctance to share data was related to a higher prevalence of statistical errors, often in the direction of statistical significance (Wicherts, Bakker, & Molenaar, 2011).

We therefore hypothesized that journal policies about data sharing and data sharing itself would reduce these inconsistencies. In Study 1, we compared the prevalence of reporting inconsistencies in two similar journals on decision making with different data sharing policies.

In Study 2, we compared reporting inconsistencies in articles published in PLOS (with a data sharing policy) and Frontiers in Psychology (without a data sharing policy). In Study 3, we looked at papers published in the journal Psychological Science to check whether papers with or without an Open Practice Badge differed in the prevalence of reporting errors.

Overall, we found no relationship between data sharing and reporting inconsistencies. We did find that journal policies on data sharing are extremely effective in promoting data sharing.

We argue that open data is essential in improving the quality of psychological science, and we discuss ways to detect and reduce reporting inconsistencies in the literature.

DOI : https://dx.doi.org/10.17605/OSF.IO/SGBTA

Understanding Perspectives on Sharing Neutron Data at Oak Ridge National Laboratory

Authors : Devan Ray Donaldson, Shawn Martin, Thomas Proffen

Even though the importance of sharing data is frequently discussed, data sharing appears to be limited to a few fields, and practices within those fields are not well understood. This study examines perspectives on sharing neutron data collected at Oak Ridge National Laboratory’s neutron sources.

Operation at user facilities has traditionally focused on making data accessible to those who create them. The recent emphasis on open data is shifting the focus to ensure that the data produced are reusable by others.

This mixed methods research study included a series of surveys and focus group interviews in which 13 data consumers, data managers, and data producers answered questions about their perspectives on sharing neutron data.

Data consumers reported interest in reusing neutron data for comparison/verification of results against their own measurements and testing new theories using existing data. They also stressed the importance of establishing context for data, including how data are produced, how samples are prepared, units of measurement, and how temperatures are determined.

Data managers expressed reservations about reusing others’ data because they were not always sure if they could trust whether the people responsible for interpreting data did so correctly.

Data producers described concerns about their data being misused, competing with other users, and over-reliance on data producers to understand data. We present the Consumers Managers Producers (CMP) Model for understanding the interplay of each group regarding data sharing.

We conclude with policy and system recommendations and discuss directions for future research.

URL : Understanding Perspectives on Sharing Neutron Data at Oak Ridge National Laboratory

DOI : http://doi.org/10.5334/dsj-2017-035