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« Background : In the current information age, the use of data has become essential for decision making in public health at the local, national, and global level. Despite a global commitment to the use and sharing of public health data, this can be challenging in reality. No systematic framework or global operational guidelines have been created for data sharing in public health. Barriers at different levels have limited data sharing but have only been anecdotally discussed or in the context of specific case studies. Incomplete systematic evidence on the scope and variety of these barriers has limited opportunities to maximize the value and use of public health data for science and policy.

Methods : We conducted a systematic literature review of potential barriers to public health data sharing. Documents that described barriers to sharing of routinely collected public health data were eligible for inclusion and reviewed independently by a team of experts. We grouped identified barriers in a taxonomy for a focused international dialogue on solutions.

Results : Twenty potential barriers were identified and classified in six categories: technical, motivational, economic, political, legal and ethical. The first three categories are deeply rooted in well-known challenges of health information systems for which structural solutions have yet to be found; the last three have solutions that lie in an international dialogue aimed at generating consensus on policies and instruments for data sharing.

Conclusions : The simultaneous effect of multiple interacting barriers ranging from technical to intangible issues has greatly complicated advances in public health data sharing. A systematic framework of barriers to data sharing in public health will be essential to accelerate the use of valuable information for the global good. »

URL : A systematic review of barriers to data sharing in public health

Alternative URL : http://www.biomedcentral.com/1471-2458/14/1144

« Academic data sharing is a way for researchers to collaborate and thereby meet the needs of an increasingly complex research landscape. It enables researchers to verify results and to pursuit new research questions with « old » data. It is therefore not surprising that data sharing is advocated by funding agencies, journals, and researchers alike. We surveyed 2661 individual academic researchers across all disciplines on their dealings with data, their publication practices, and motives for sharing or withholding research data. The results for 1564 valid responses show that researchers across disciplines recognise the benefit of secondary research data for their own work and for scientific progress as a whole-still they only practice it in moderation. An explanation for this evidence could be an academic system that is not driven by monetary incentives, nor the desire for scientific progress, but by individual reputation-expressed in (high ranked journal) publications. We label this system a Reputation Economy. This special economy explains our findings that show that researchers have a nuanced idea how to provide adequate formal recognition for making data available to others-namely data citations. We conclude that data sharing will only be widely adopted among research professionals if sharing pays in form of reputation. Thus, policy measures that intend to foster research collaboration need to understand academia as a reputation economy. Successful measures must value intermediate products, such as research data, more highly than it is the case now. »

URL : http://arxiv.org/abs/1503.00481