Archives des auteurs : Hans Dillaerts

Philosophy of Open Science

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Author : Sabina Leonelli

In response to broad transformations brought about by the digitalization, globalization, and commodification of research processes, the Open Science [OS] movement aims to foster the wide dissemination, scrutiny and re-use of research components for the good of science and society.

This Element examines the role played by OS principles and practices within contemporary research and how this relates to the epistemology of science. After reviewing some of the concerns that have prompted calls for more openness, I highlight how the interpretation of openness as the sharing of resources, so often encountered in OS initiatives and policies, may have the unwanted effect of constraining epistemic diversity and worsening epistemic injustice, resulting in unreliable and unethical scientific knowledge.

By contrast, I propose to frame openness as the effort to establish judicious connections among systems of practice, predicated on a process-oriented view of research as a tool for effective and responsible agency.

URL : http://philsci-archive.pitt.edu/id/eprint/21986

The Many Publics of Science: Using Altmetrics to Identify Common Communication Channels by Scientific field

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Authors : Daniel Torres-Salinas, Domingo Docampo, Wenceslao Arroyo-Machado, Nicolas Robinson-Garcia

Altmetrics have led to new quantitative studies of science through social media interactions. However, there are no models of science communication that respond to the multiplicity of non-academic channels.

Using the 3653 authors with the highest volume of altmetrics mentions from the main channels (Twitter, News, Facebook, Wikipedia, Blog, Policy documents, and Peer reviews) to their publications (2016-2020), it has been analyzed where the audiences of each discipline are located.

The results evidence the generalities and specificities of these new communication models and the differences between areas. These findings are useful for the development of science communication policies and strategies.

URL : https://arxiv.org/abs/2304.05157

Attitudes Toward Providing Open Access for Use of Biospecimens and Health Records: A Cross-Sectional Study from Jordan

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Authors : Kamal M Al-Shami, Wesam S Ahmed, Karem H Alzoubi

Purpose

Biospecimen repositories and big data generated from clinical research are critically important in advancing patient-centered healthcare. However, ethical considerations arising from reusing clinical samples and health records for subsequent research pose a hurdle for big-data health research. This study aims to assess the public’s opinions in Jordan toward providing blanket consent for using biospecimens and health records in research.

Participants and Methods

A cross-sectional study utilizing a self-reported questionnaire was carried out in different cities in Jordan, targeting adult participants. Outcome variables included awareness of clinical research, participation in clinical research, and opinions toward providing open access to clinical samples and records for research purposes.

Descriptive analysis was utilized for reporting the outcome as frequency (percentages) out of the total responses. Univariate and multivariate logistic regression were used to investigate the association between independent variables and the outcome of interest.

Results

A total of 1033 eligible participants completed the questionnaire. Although the majority (90%) were aware of clinical research, only 24% have ever participated in this type of research. About half (51%) agreed on providing blanket consent for the use of clinical samples, while a lower percentage (43%) agreed on providing open access to their health records.

Privacy concerns and lack of trust in the researcher were cited as major barriers to providing blanket consent. Participation in clinical research and having health insurance were predictors for providing open access to clinical samples and records.

Conclusion

The lack of public trust in Jordan toward data privacy is evident from this study. Therefore, a governance framework is needed to raise and maintain the public’s trust in big-data research that warrants the future reuse of clinical samples and records. As such, the current study provides valuable insights that will inform the design of effective consent protocols required in data-intensive health research.

URL : Attitudes Toward Providing Open Access for Use of Biospecimens and Health Records: A Cross-Sectional Study from Jordan

DOI : https://doi.org/10.2147/PPA.S402769

Alive Publication

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Author : Mikhail Gorbunov-Posadov

An alive publication is a new genre for presenting the results of scientific research, where the scientific work is published online, and then is constantly being developed and improved by its author. Serious errors and typos are no longer fatal, nor do they haunt the author for the rest of his or her life. The reader of an alive publication knows that the author is constantly monitoring changes occurring in this branch of science.

Alive publication faces the inertia of scientific publishing traditions and, in particular, traditional bibliometrics. Unfortunately, at present, the author who supports an alive publication is dramatically losing out on many generally accepted bibliometric indicators.

The alive publication encourages the development of the bibliography apparatus. Each bibliographic reference will soon have to contain on-the-fly attributes such as attendance, number of external links, date of the last revision, etc.

In the opinion of the writer of these lines, as the alive publication spreads over to the scientific world, the author’s concern for the publication’s evolution will become like a parent’s care for the development of a child. The Internet will be filled with scientific publications that do not lose their relevance with time.

URL : Alive Publication

DOI : https://doi.org/10.3390/publications11020024

Do Open Access Mandates Work? A Systematized Review of the Literature on Open Access Publishing Rates

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Authors : Elena Azadbakht, Tara Radniecki, Teresa Schultz, Amy W. Shannon

To encourage the sharing of research, various entities—including public and private funders, universities, and academic journals—have enacted open access (OA) mandates or data sharing policies.

It is unclear, however, whether these OA mandates and policies increase the rate of OA publishing and data sharing within the research communities impacted by them. A team of librarians conducted a systematized review of the literature to answer this question. A comprehensive search of several scholarly databases and grey literature sources resulted in 4,689 unique citations.

However, only five articles met the inclusion criteria and were deemed as having an acceptable risk of bias. This sample showed that although the majority of the mandates described in the literature were correlated with a subsequent increase in OA publishing or data sharing, the presence of various confounders and the differing methods of collecting and analyzing the data used by the studies’ authors made it impossible to establish a causative relationship.

URL : Do Open Access Mandates Work? A Systematized Review of the Literature on Open Access Publishing Rates

DOI : https://doi.org/10.31274/jlsc.15444

Open science in Sámi research: Researchers’ dilemmas

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Author : Coppélie Cocq

This article discusses the challenges of Indigenous research in relation to open science, more particularly in relation to Sámi research in Sweden. Based on interviews with active scholars in the multidisciplinary field of Sámi studies, and on policy documents by Sámi organizations, this article points at the challenges that can be identified, and the practices and strategies adopted or suggested by researchers.

Topics addressed include ownership, control, sensitivity and accessibility of data, the consequences of experienced limitations, the role of the historical context, and community-groundedness.

This article has the ambition to contribute with a discussion about the tensions between standards of data management/open science and data sovereignty in Indigenous contexts. This is done by bringing in perspectives from Indigenous methodologies (the 4 R) and by contextualizing research practices and forms of data colonialism in relation to our contemporary context of surveillance culture.

Research—in relation to ethics and social sustainability—is an arena where tensions between various agendas becomes obvious. This is illustrated in this article by researchers’ dilemmas when working with open science and the advancement of Indigenous research.

Efforts toward ethically valid and cultural-sensitive modes of data use are taking shape in Indigenous research, calling for an increased awareness about the topic. In the context of Sámi research, the role of academia in such a transformation is also essential.

URL : Open science in Sámi research: Researchers’ dilemmas

DOI : https://doi.org/10.3389/frma.2023.1095169

What constitutes equitable data sharing in global health research? A scoping review of the literature on low-income and middle-income country stakeholders’ perspectives

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Authors : Natalia Evertsz, Susan Bull, Bridget Pratt

Introduction

Despite growing consensus on the need for equitable data sharing, there has been very limited discussion about what this should entail in practice. As a matter of procedural fairness and epistemic justice, the perspectives of low-income and middle-income country (LMIC) stakeholders must inform concepts of equitable health research data sharing.

This paper investigates published perspectives in relation to how equitable data sharing in global health research should be understood.

Methods

We undertook a scoping review (2015 onwards) of the literature on LMIC stakeholders’ experiences and perspectives of data sharing in global health research and thematically analysed the 26 articles included in the review.

Results

We report LMIC stakeholders’ published views on how current data sharing mandates may exacerbate inequities, what structural changes are required in order to create an environment conducive to equitable data sharing and what should comprise equitable data sharing in global health research.

Conclusions

In light of our findings, we conclude that data sharing under existing mandates to share data (with minimal restrictions) risks perpetuating a neocolonial dynamic. To achieve equitable data sharing, adopting best practices in data sharing is necessary but insufficient. Structural inequalities in global health research must also be addressed.

It is thus imperative that the structural changes needed to ensure equitable data sharing are incorporated into the broader dialogue on global health research.

URL : What constitutes equitable data sharing in global health research? A scoping review of the literature on low-income and middle-income country stakeholders’ perspectives

DOI : http://dx.doi.org/10.1136/bmjgh-2022-010157